Exactly one year ago today, Maverick and I underwent surgery at Children's in Milwaukee. I remember being scared, hopeful, nervous and generally anxious. It is often referred to as his butt day or as I have decided to refer to it - his sneak-a-peek day!
I sit here, holding my beautiful baby boy, who is thriving, happy, easy-going and doing so wonderful and cannot associate the feelings from before with this little one who fits so perfectly into our family. Josh and I are so grateful for the care we received at Children's Wisconsin and the benefits that Maverick has received from the surgery. We still have a long road ahead of us and I'm sure there will be ups and downs, but it will be a journey that we take as a family.
Friday, February 12, 2016
Thursday, February 11, 2016
Big strides
2 big things for Maverick- he's now rolling from his tummy to his back and his first tooth has broken through.
Both of these things happened while I was out of town for work:( and the poor little one has caught his first real cold with nasal congestion and yucky cough. Hopefully he's on the mend since sleep has been difficult.
Both of these things happened while I was out of town for work:( and the poor little one has caught his first real cold with nasal congestion and yucky cough. Hopefully he's on the mend since sleep has been difficult.
Thursday, December 31, 2015
Update on Maverick
I haven't posted an update on Maverick in a while which is a result of 2 main things: no real news and lack of time on my side. He had his last clinic day back in September and his next one is in January. We did have an appt with neurosurgery in November with another quick brain MRI to monitor his ventricles. They remain on the larger side of normal but don't warrant any intervention at this point. He also had a sedated CMG right before Christmas to see how his bladder is doing in terms of volume and pressure. We won't get the results until next week sometime but the medicine he's taking appears to be helping as the volume was significantly higher than in June.
Our main focus right now is on developing some core strength to help Maverick sit up unassisted, roll over and eventually get up on all fours. We have an Occupational therapist come to our house 2X a month to review and provide us with good exercises to incorporate into every day routines. I can see progress already!
Our main focus right now is on developing some core strength to help Maverick sit up unassisted, roll over and eventually get up on all fours. We have an Occupational therapist come to our house 2X a month to review and provide us with good exercises to incorporate into every day routines. I can see progress already!
Thursday, December 24, 2015
Merry Christmas!
I realize that I haven't updated in a while so I promise to do that next week when I'm off work. For now, I'd like to wish you all a merry Christmas!
Saturday, November 21, 2015
All I want for Christmas
All Jaeger wants for Christmas is his front tooth back!
Thursday evening we were getting ready to go to Jaxons Cub Scout meeting. I was changing Mavericks diaper and Jaeger was excitedly talking to me about coming with. He was standing on a plastic bin for his cars and as I reminded him that he may get hurt doing that and he should stand on the floor, the bin tipped and he fell forward. He caught both front teeth on the drawer knob which pushed them out, almost perpendicular to normal position. Lots of blood, some tears and Josh eventually pulling one tooth out. I took him to dentist first thing Friday morning and while there is nothing to do now, we should expect the other front tooth to eventually die and need to be pulled. Jaeger will have a few years before his adult teeth come in so he's going to have to figure out how to bite/eat certain foods in the meantime. Poor guy told me his teeth were broken when he was trying to eat Thursday night!
Thursday evening we were getting ready to go to Jaxons Cub Scout meeting. I was changing Mavericks diaper and Jaeger was excitedly talking to me about coming with. He was standing on a plastic bin for his cars and as I reminded him that he may get hurt doing that and he should stand on the floor, the bin tipped and he fell forward. He caught both front teeth on the drawer knob which pushed them out, almost perpendicular to normal position. Lots of blood, some tears and Josh eventually pulling one tooth out. I took him to dentist first thing Friday morning and while there is nothing to do now, we should expect the other front tooth to eventually die and need to be pulled. Jaeger will have a few years before his adult teeth come in so he's going to have to figure out how to bite/eat certain foods in the meantime. Poor guy told me his teeth were broken when he was trying to eat Thursday night!
Wednesday, November 18, 2015
Networking
In Wisconsin, there is a group called Spina Bifida Family Network. They organize various social gatherings to allow families to connect and hang out together. We went to our first event, a weekend away at a hotel in Oshkosh (about 100 miles from us). It was really nice to meet other families and see kids of all ages. Jaxon and Jaeger had fun swimming, but Maverick was not a fan of the echoes in the pool area. Instead we hung out in the main room meeting new friends.
Quite a few of the events are just dinner meet ups so we are looking forward to attending more!
Quite a few of the events are just dinner meet ups so we are looking forward to attending more!
Tuesday, November 17, 2015
Faces of Fetal Surgery
A fellow fetal surgery mom put together a video with 150+ fellow fetal surgery moms and kiddos. Maverick and I appear around the 6:30 mark.
https://www.youtube.com/watch?v=gYyT2IBBLQ4
While this is not a journey anyone asks to go on, it helps to have great support structures once you're on it. These families make up a facebook group that is a fantastic place to ping and get understanding and help from!
https://www.youtube.com/watch?v=gYyT2IBBLQ4
While this is not a journey anyone asks to go on, it helps to have great support structures once you're on it. These families make up a facebook group that is a fantastic place to ping and get understanding and help from!
Subscribe to:
Posts (Atom)