I've been back at work for almost 2 weeks now and in some respects, it's nice to get back into the "normal" swing of things but on the other hand, little tasks like grabbing lunch a few buildings over require quite a bit more physical effort. I've managed to make it through the 3500+ emails waiting in my inbox and now can begin to prepare for the next outage! Working definitely zaps my energy but generally am still feeling alright, hoping to make it another 3-5 weeks.
One thing that I've noticed is that I'm a lot more aware of similar stories out there or references to Spina Bifida in other areas. In particular, it seems that there are starting to be quite a few more news articles with a spot light on the in utero surgery option that I underwent ~7 weeks ago. Here are a couple links that I've read:
* http://www.wisn.com/news/baby-still-in-womb-undergoes-groundbreaking-procedure-at-childrens-hospital/29470172
** This one showcases the first surgery at the hospital where I had mine performed.
* http://kstp.com/article/stories/S3749222.shtml
* http://www.today.com/health/parents-baby-spina-bifida-place-hopes-fetal-surgery-2D80577191?cid=sm_fbn
It also looks like PBS is doing a mini-series titled "Twice Born" featuring the Children's Hospital of Philadelphia, one of the pioneers for fetal surgery. One of the stories being told is about a couple expecting a baby diagnosed with SB.
* http://www.pbs.org/program/twice-born/
My next OB appointment is on Thursday so I'm sure I'll post another update later this week.
Place to share with others the crazy that is the Hughes household with 3 boys!
Tuesday, March 31, 2015
Wednesday, March 18, 2015
Recovery time has come to an end
We are all still here, just been maintaining status quo with books, TV, and kiddo snuggles. Today I had my regular checkup for an ultrasound and OB visit. Things are progressing just as we would like so that's great news! Baby boy is estimated to be up to 3 lbs 5 oz (which surprisingly is only in the 38 percentile and not at all on par with my other chunky boys :)) and appears to have a head full of hair. Ventricles are up slightly (to 12 mm) but still within the mild range and not concerning to the doctor. Amniotic fluid level is around 14 so also remaining constant and the uterus wall hasn't thinned at all. When trying to check out his spine, this stinker had his hands on his back, obstructing a good view of that area yet again. That did mean that we got a nice profile shot of him and it is very likely that he will join his brothers in having his daddy's cute nose! We will begin discussing delivery timelines in 3 weeks when I will be 33 weeks and, based on ultrasounds and non-stress tests to see how baby does at some basics like breathing/moving, it'll be between 35 and 37 weeks. The other piece of good (although some may not agree with that label) news is that I got cleared to go back to work tomorrow. This means that I'll hopefully get up to 7 weeks in before this guy joins us!
Friday, March 6, 2015
I'm still here....
I know it's been a little while since an update but there hasn't been much happening except the normal "Mommy, this" and "Mommy, that"! I've spent the week, trying to take it easy but also soak up some time with the boys. It won't be too long before we add another one to the mix :)
I had a doctor's appointment yesterday. Baby's ventricles have decreased some in size (normal is 10 mm or less and we're seeing 10.5 mm) and the OB actually commented that in other situations, they wouldn't even be concerned about them. Baby's brain has also lost the "banana" shape and is returning to a somewhat normal shape/position. Amniotic fluid levels remain good which is great and we even saw them go up a little since Milwaukee. He's gained ~4 ounces since last week and is estimated to be 2 lbs 9 oz now. This boy has been a stinker since the surgery and has his butt up flush with the uterus wall so we haven't been able to get a good look at his closure (they try using 3D ultrasound) but since we're seeing positive indications, there are no worries. From my aspect, the c-section incision has healed, no infection and am generally recovered. If I spend too much time on my feet, I notice some soreness appear but is easily cured by some couch time :) I'll most likely go back to work after my next appt in 2 weeks. That puts me at ~5 weeks off and hopefully have 6 or 7 weeks of work before this guy arrives.
I had a doctor's appointment yesterday. Baby's ventricles have decreased some in size (normal is 10 mm or less and we're seeing 10.5 mm) and the OB actually commented that in other situations, they wouldn't even be concerned about them. Baby's brain has also lost the "banana" shape and is returning to a somewhat normal shape/position. Amniotic fluid levels remain good which is great and we even saw them go up a little since Milwaukee. He's gained ~4 ounces since last week and is estimated to be 2 lbs 9 oz now. This boy has been a stinker since the surgery and has his butt up flush with the uterus wall so we haven't been able to get a good look at his closure (they try using 3D ultrasound) but since we're seeing positive indications, there are no worries. From my aspect, the c-section incision has healed, no infection and am generally recovered. If I spend too much time on my feet, I notice some soreness appear but is easily cured by some couch time :) I'll most likely go back to work after my next appt in 2 weeks. That puts me at ~5 weeks off and hopefully have 6 or 7 weeks of work before this guy arrives.
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