Thankful

There is so much to be thankful this year:

•  my husband who has endless patience in his stay-at-home days, his willingness to cook and clean and his humor he brings to all situations 
• Jaxon who is independent, a generally good helper, fantastic big brother, and sweetest boy who wears his emotions on the outside 
• Jaeger who is strong minded, persistent, inquisitive, and lover of all things cars and transportation. 
• Maverick who is the biggest fighter showing strength and optimism in all that he has to endure, his newly-found appetite for all things food, and his quirky dislikes including stuffed animals and collared shirts 
• My family who is always there for us and such fun to spend time with 
• And all the friends present in our lives

And to end this, a picture to show joy amongst the mess!

 

Candy for days

I realized that I never posted about Halloween. The boys had a great time, trick or treating at my work and also in the neighborhood. They all got way too much candy but they had a blast in the process!

Jaxon as Kylo Ren (his latest obsession is Star Wars):

 

Jaeger as a ninja turtle (the purple one!):

 

And Maverick as Yoda (he tolerated the hat way better than I thought):

 

And all together:

 

 

Little blue cast

Surgery on Wednesday went well and only took 20 minutes to do the procedure and cast. He's tolerated the cast so far, although he tries to pull it off like a sock. Luckily he can still fit in his Zipzac chair so he's been wheeling through the house like normal!  Cast will come off the week before Christmas and then he'll need a new AFO that provides greater support to him in a weight-baring position. 

 

 

 

 

Surgery #4

We've got the next surgery scheduled for Maverick coming up on Wednesday. He's always had a very tight right foot and his ortho dr has decided that it's time to do a heel-cord release to let that foot get into a weight-baring position more easily. Good news is that his limited feeling down there will let us do this in clinic as opposed to the hospital. He will have a full leg cast for 6 weeks and I've got my fingers crossed that he will still be able to fit in his Zipzac chair!

New sleeping arrangements

A few years ago, we bought bunk beds with a full bed on the bottom with the hope that the 2 older boys would share a room. Fast forward to now and Jaeger pretty much considered his parents room as his own. Turns out Jaxon is not the nicest co-sleeper as his knees end up in your back and neither was interested in the top bunk!  Bunk beds removed and each now have their own bed within their room.  

 

 

 

New set of wheels

At the beginning of this month, Maverick got a new set of wheels - a Zipzac chair!

It's taken him a little bit to figure out how to use both hands and turn but he's got it down now. Poor Izzy has had her tail run over a few times:(

Here's a couple videos that show the progression he made. 

He figured out his right hand first.

And now he is cruising through the whole house!

October is Awareness month

October is Spina Bifida awareness month and one of the moms from an online group of fetal surgery families posted this which I thought was quite informative