Place to share with others the crazy that is the Hughes household with 3 boys!
Saturday, November 19, 2016
Little blue cast
Surgery on Wednesday went well and only took 20 minutes to do the procedure and cast. He's tolerated the cast so far, although he tries to pull it off like a sock. Luckily he can still fit in his Zipzac chair so he's been wheeling through the house like normal! Cast will come off the week before Christmas and then he'll need a new AFO that provides greater support to him in a weight-baring position.
Saturday, November 12, 2016
Surgery #4
We've got the next surgery scheduled for Maverick coming up on Wednesday. He's always had a very tight right foot and his ortho dr has decided that it's time to do a heel-cord release to let that foot get into a weight-baring position more easily. Good news is that his limited feeling down there will let us do this in clinic as opposed to the hospital. He will have a full leg cast for 6 weeks and I've got my fingers crossed that he will still be able to fit in his Zipzac chair!
Tuesday, November 8, 2016
New sleeping arrangements
A few years ago, we bought bunk beds with a full bed on the bottom with the hope that the 2 older boys would share a room. Fast forward to now and Jaeger pretty much considered his parents room as his own. Turns out Jaxon is not the nicest co-sleeper as his knees end up in your back and neither was interested in the top bunk! Bunk beds removed and each now have their own bed within their room.
Sunday, October 30, 2016
New set of wheels
At the beginning of this month, Maverick got a new set of wheels - a Zipzac chair!
It's taken him a little bit to figure out how to use both hands and turn but he's got it down now. Poor Izzy has had her tail run over a few times:(
Here's a couple videos that show the progression he made.
He figured out his right hand first.
And now he is cruising through the whole house!
Friday, October 7, 2016
October is Awareness month
October is Spina Bifida awareness month and one of the moms from an online group of fetal surgery families posted this which I thought was quite informative
Wednesday, September 7, 2016
Hungry hungry hippo!
It was a short 2 months ago that Maverick spent almost a week in the hospital for refusing to eat. And he's been making huge strides forward ever since we got discharged home. His newest food that he has discovered and loved is mashed potatoes and gravy. This kid will be ready for a full thanksgiving dinner!!
Monday, August 29, 2016
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