October is Awareness month

October is Spina Bifida awareness month and one of the moms from an online group of fetal surgery families posted this which I thought was quite informative  

Hungry hungry hippo!

It was a short 2 months ago that Maverick spent almost a week in the hospital for refusing to eat. And he's been making huge strides forward ever since we got discharged home. His newest food that he has discovered and loved is mashed potatoes and gravy.   This kid will be ready for a full thanksgiving dinner!!  

Brothers!

 

Busy busy bees!

Life is definitely busy in our house, mostly with 1-3 appointments a week for Maverick but the other boys have their share too!  Here's a glimpse into some of our weeks:

Week of July 18

• Maverick appt for his left AFO 
• Jaeger pre-surgery check up
• Jaxon and Jaeger swimming lessons 
• Maverick physical therapy (PT) appt  (takes 2 hours of my day)

Week of July 25

• Maverick PT appt
• Maverick Birth to 3 appt (in home therapy)

Week of Aug 1

• Grievances Meeting for Insurance coverage of a zipzac chair for Maverick 
• Maverick PT appt
• Maverick feeding therapy appt
• Jaeger dental surgery (his 2nd front tooth had to be pulled)

Week of Aug 8

• Maverick Birth to 3 appt 

School starts on Thursday for the older boys and I think all parties are ready!  I'm hoping that Josh will be able to take Maverick to some of his appts during the short 3 hour window where Jaeger is at 4K which would allow me to get work done during the normal day!

Still on the go!

Just thought that I would share a video of Maverick using the car!

Go Baby Go!

The UW has a program called Go Baby Go that brings together PT and Engineering students to modify motorized cars to fit kids with special needs.  Maverick was selected to receive one of these cars during the latest build day. They did such an amazing job of adding in support where he needs it and looking to the future as his needs change. He got a little overwhelmed during the build process and wasn't too keen on trying it out there but once we brought it home, he quickly figured it out and couldn't stop grinning. 

 

Staycation!

I had a free night at a Marriott hotel to use up by end of July so I decided to book a night at one here in town and have a little staycation with the older boys!  It was really nice to be close to home yet give the boys some out of the norm time. We did quite a bit of swimming as their pool had a nice shallow end for Jaeger and Jaxon could swim all over. 

 

 

 

 

 

As bedtime came, the boys got sad and missed Daddy so we packed up and headed home for sleep in our own beds 😀