Busy busy bees!

Life is definitely busy in our house, mostly with 1-3 appointments a week for Maverick but the other boys have their share too!  Here's a glimpse into some of our weeks:

Week of July 18

• Maverick appt for his left AFO 
• Jaeger pre-surgery check up
• Jaxon and Jaeger swimming lessons 
• Maverick physical therapy (PT) appt  (takes 2 hours of my day)

Week of July 25

• Maverick PT appt
• Maverick Birth to 3 appt (in home therapy)

Week of Aug 1

• Grievances Meeting for Insurance coverage of a zipzac chair for Maverick 
• Maverick PT appt
• Maverick feeding therapy appt
• Jaeger dental surgery (his 2nd front tooth had to be pulled)

Week of Aug 8

• Maverick Birth to 3 appt 

School starts on Thursday for the older boys and I think all parties are ready!  I'm hoping that Josh will be able to take Maverick to some of his appts during the short 3 hour window where Jaeger is at 4K which would allow me to get work done during the normal day!

Still on the go!

Just thought that I would share a video of Maverick using the car!

Go Baby Go!

The UW has a program called Go Baby Go that brings together PT and Engineering students to modify motorized cars to fit kids with special needs.  Maverick was selected to receive one of these cars during the latest build day. They did such an amazing job of adding in support where he needs it and looking to the future as his needs change. He got a little overwhelmed during the build process and wasn't too keen on trying it out there but once we brought it home, he quickly figured it out and couldn't stop grinning. 

 

Staycation!

I had a free night at a Marriott hotel to use up by end of July so I decided to book a night at one here in town and have a little staycation with the older boys!  It was really nice to be close to home yet give the boys some out of the norm time. We did quite a bit of swimming as their pool had a nice shallow end for Jaeger and Jaxon could swim all over. 

 

 

 

 

 

As bedtime came, the boys got sad and missed Daddy so we packed up and headed home for sleep in our own beds 😀

Fishies

Jaxon just loves to swim and he has made such progress in the last few months. This last round Jaeger has also started taking lessons but he's not quite as adventurous as his older brother. 

Happy Fourth!

Happy Fourth of July from the Hughes boys!! 

And then not too much later, Maverick got pretty proud of himself....

 

And in an unrelated note, I think I broke my toe yesterday. I blame it on the super messy basement that i was in the process of cleaning up.  I almost cried and Jaeger laughed, think I can count on him when someone needs a nurse??

Home=Happy baby

Maverick was discharged yesterday afternoon and immediately you could tell he was instantly happier. He's even eating from a bottle, although it has to be given by Josh. I don't think he has moved past mommy as the source of food and comfort nursing. We have a few follow up appointments next week to evaluate blood work and weight progress. I remain optimistic that we are headed in the right direction and the ng tube will be a short term thing. 

Me: Maverick, you ready to go home?

Maverick: (big grin pictured below)

 

Some pics from the last day at home: