Sneak a peek Pictures!

Love these pictures that represent what Maverick and I went through in Feb 2015 

 

 

 

Foot Attire

Here is Mavericks new AFO!  He got this back in February and will get a left one this week so that he can begin to work on weight bearing exercises. 

 

Catch Up

So it's been 2 months since my last update but that's not to say that things haven't been cruising along. Let's try and do a re-cap of all stuff new:
* My phone app that I use to blog and upload pictures broke so this post will also be picture-less. I need to find a new one as I have a bunch of cute photos to share!
* We ordered a right ankle foot orthotic (AFO) in early February and received it a couple weeks later.  He only wears it at night and thankfully seems to tolerate wearing it pretty well.
* We spent a weekend in the Wisc Dells with Travis and Kristi and their kiddos.  We all had a fun time, even Maverick who I was worried would be bothered by the echoing noise in the pool area.  He ended up enjoying the pool and all the people to watch.
* I had pictures taken of Maverick in mid-February to celebrate his sneak-a-peek day.  They turned out amazing and I am so glad we did that.  I'll share a few in another post.
* Maverick had outpatient surgery on March 14 (nothing SB related).  All went well except for his sleep since then.  He has decided that waking up every 2-3 hours is a fun game to play with mommy.  Ultimately, he wins that game :(  He's also turned into a major mommy's boy which results in me holding him often.  I don't complain too much about that and try to soak up the cuddles when I can!
* My grandpa passed away on March 12.  Luckily I (along with Jaxon) was able to go visit him the day before he passed.  The whole family made the trek to Sheldon for the funeral - 14 hours in the car does not equal fun for all, in particular a baby who doesn't want to be in his car seat.  But it was nice to see family and reminisce about the great memories with Grandma and Grandpa Potter.
* Maverick has started weekly PT clinic visits.  The hope is that this propels forward some of the progress that we're seeing in the gross motor development area.  He's handling it okay, ends up getting fussy about 40 minutes into the 60 minute session.  As he gets used to the PT, maybe this will get better.
* Maverick turns 1 this coming Sunday.  Where on earth does the time go?  I cannot believe how fast these past 52 weeks have gone by.  I also can honestly say that outside of the many many doctor's appointments, I've been pleased with how little actual interventions we've needed to do in relation to SB.  He's my rock star!

Sneak-A-Peek!

Exactly one year ago today, Maverick and I underwent surgery at Children's in Milwaukee.  I remember being scared, hopeful, nervous and generally anxious.  It is often referred to as his butt day or as I have decided to refer to it - his sneak-a-peek day!

I sit here, holding my beautiful baby boy, who is thriving, happy, easy-going and doing so wonderful and cannot associate the feelings from before with this little one who fits so perfectly into our family.  Josh and I are so grateful for the care we received at Children's Wisconsin and the benefits that Maverick has received from the surgery.  We still have a long road ahead of us and I'm sure there will be ups and downs, but it will be a journey that we take as a family.

Big strides

2 big things for Maverick- he's now rolling from his tummy to his back and his first tooth has broken through.

Both of these things happened while I was out of town for work:( and the poor little one has caught his first real cold with nasal congestion and yucky cough. Hopefully he's on the mend since sleep has been difficult.

Update on Maverick

I haven't posted an update on Maverick in a while which is a result of 2 main things: no real news and lack of time on my side. He had his last clinic day back in September and his next one is in January. We did have an appt with neurosurgery in November with another quick brain MRI to monitor his ventricles. They remain on the larger side of normal but don't warrant any intervention at this point. He also had a sedated CMG right before Christmas to see how his bladder is doing in terms of volume and pressure. We won't get the results until next week sometime but the medicine he's taking appears to be helping as the volume was significantly higher than in June.

Our main focus right now is on developing some core strength to help Maverick sit up unassisted, roll over and eventually get up on all fours. We have an Occupational therapist come to our house 2X a month to review and provide us with good exercises to incorporate into every day routines. I can see progress already!

Merry Christmas!

I realize that I haven't updated in a while so I promise to do that next week when I'm off work. For now, I'd like to wish you all a merry Christmas!